Monday, July 28, 2014

What is a Spoonie?

Hello World!

I am Joycelynn, I am 24, and this is my journey through this beautiful mess of a life as a spoonie. What is a spoonie? A spoonie is someone that lives with a chronic illness such as Lupus, Fibromyalgia, Scleroderma, etc. The name for people who live their lives with such illness came from, in my opinion, "The Spoon Theory" written by Christine Miserandino. If you would like to learn about "The Spoon Theory", here is the link to the article.

http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/

I think that article is the best description of what someone with a chronic illness has to deal on a daily basis. I hope it helps every one, whether you have a chronic illness or you have someone that has one, have a more understanding of what it is to be like in spoonie's shoes. It honestly put so much in perspective for me and people around me so I think it will sincerely help others if you have not discovered it yet.

With that being said, the title of my blog is very self explanatory of what is to come. I personally have Fibromyaglia, Sjogrens, Hoshimoto Thyroiditis, Raynauds Phenomenon, test positive for Scleroderma, and more recently Schamberg's Disease. This is my thoughts and feelings of my every day life as a spoonie, from my darkest moments to the most colorful moments in my life and everything in between. It will be my life and figuring out my new "normal" as my momma likes to say. Come along on my journey, it is going to be an amazing and scary roller coaster ride of my life.

XO,

Joycelynn Ann







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